29-06-2025 03:54 PM
29-06-2025 03:54 PM
Hey @Dimity, thank you for sharing your story with us!
Sounds like you have been going through this for a long time and have good insight into your experiences. I get delusions, and the narrative of my psychotic episodes creeps in sometimes, but I am aware of what's going on and that it's delusional thinking. It's more like daydreaming for me now, and I don't believe it like when I lost touch with reality.
From what I have learned, it can be quite common to have diagnoses changed over time, and it happened to me too. Schizophrenia is a spectrum disorder and is not all about psychotic symptoms, but they can often be present when we come into contact with MH services.
That's good to hear that you have been on the same antipsychotic for 20 years as the one I take works really well for me and I have been on it for 9 years. I am not interested in changing so I hope there is no reason for me to have to consider it in the future. Gaining weight is my biggest side effect and I am concern how that plays into my life expectancy. I really struggle with exercise where that was not an issues before I had psychocis nearly 20 years ago.
I love the idea of creating a space to support carers of people hearing voices and psychosis!! Amazing idea 💡 Though carers are welcome in this thread and reading about other peoples experiences my be beneficial too.
Take care
RiverSeal
29-06-2025 04:12 PM
29-06-2025 04:12 PM
Hey @Bunniekins, that's interesting that your son experienced seeing things at such a young age, and I am sure it must have been challenging for you both. I'm curious how he is doing now and if he identifies with the diagnosis or interprets his experiences differently. It is very common in this thread to have alternative views to the medical model. Take care RiverSeal ❤️
30-06-2025 03:44 PM
30-06-2025 03:44 PM
@RiverSeal my son hears voices and entities all the time like you and i talking now. they just butt in and join in the conversation. he hasnt had a visual hallucination for a long while. it is weird like that. i have more visual hallucinations than he does.
12-07-2025 11:56 AM
12-07-2025 11:56 AM
Thank you for sharing this, @RiverSeal
[name removed by moderator]
17-09-2025 03:46 PM
17-09-2025 03:46 PM
Thank you for your response, I found the forum interesting but unfortunately could not find a way to post to it and so have written a post within this post plus added some of the forum contributors. It may help somehow, if it can be added into the forum that would be great, if not then hopefully the others will receive this message.
Regards
Altitleorange
Thank you for your story.
Before I tell you mine let me tell you what brought me to SANE and that was to see if I could find some type of peer support network rather than the usual psychologist sessions. The reason is that there is no one beyond them in my day to day life to discuss my schizophrenia and paranoia with, because when I did it once with a new friend they nearly freaked.
It tends to make you button your lip, and tragically events in society such as a shopping Centre rampage not by me but others that were reported as schizophrenic do nothing to help this.
I have friends and acquaintances, not though that know my health record, and even with my family it is not discussed.
Now to my story.
I divorced in my mid 30’s, and at roughly the same time stated to hear voices. At first it was an irritant and not something I bothered with. Over the next two years this increased and my head turned into a not so well supported FM Radio station, with music and playlists and back stories and voices.
It made it difficult to function, and especially in a high-pressure job.
I had epilepsy as a child and that taught me to delve into the root cause of things, but this was a mystery to me. In time the paranoia crept in and the media were following me everywhere. I could not watch even Playschool it got that ridiculous and did not read a newspaper for nearly two years.
Eventually things got even worse as a voice took charge, and this was malicious and was trying to drive me towards suicide. In time I saw a GP in Melbourne and explained all this who referred me to a psychiatrist that medicated me successfully. This took years for me to achieve though, not the medication but the simple process of getting the nerve to discuss this ‘insanity’ with a Doctor.
I live on my medication, which was changed but still controls this situation, and perhaps as others on this site indicate it will shorten my life but it is not much of a life without it.
I have written a self-help book that is a fiercely independent as me, and still write occasionally, these my outlets beyond medication and psych’s, and it is possible that the psychosis even allowed me to develop these skills that had been so underdeveloped before.
That in summary is my story, and reason for initially seeking something like SANE. It seems worthwhile if I can contribute to the overall conversation and perhaps assist others in some way with my tale.
Does it repair the isolated state? No, that is something that the stigma of society for the moment it seems precludes to some extent however I did find a research project with aims, and from my review good data, to if not correct then ameliorate this to some extent.
I can only wish Melbourne university, SANE, you and others success in this.
Alittleorange
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